My name is Deanna Kaparo, and I’m really grateful for your time.
I am a 32 year old female. I was diagnosed with CRPS in August of 2023 after three weeks in a boot following a lisfranc sprain in my left foot. An MRI on 9/21/2023 reported: “Tarsometatarsal articulations are aligned and believe Lisfranc ligamentous complex is intact. No evidence of occult fracture. There are mild osteoarthritic changes noted to the third TMT joint. There is a third small interspace neuroma.”
The excruciating pain of CRPS has exacerbated all my other ailments, including Psoriasis, Psoriatic Arthritis, Fibromyalgia, IBS, GERD, POTS, EDS, and other issues. Though I consulted with many specialists, they all referred me back to pain management, which started me on maintenance drugs, blocks, and PT. Since then, I have tried hundreds of hours of traditional desensitization PT, biofeedback, mirror therapy, CBT, IFS, trauma-informed mindfulness, support groups, pain education, anti-inflammatory diets, and much more.
Nothing has reduced my pain, and while I have begun to make my life about living again, the pain makes everything I do almost impossible. For over two years, I haven’t been able to wiggle my foot or toes, or put a blanket/shoe/sock on my foot (besides a walking boot). I can’t walk without a knee scooter/iwalk for over 5 minutes, or have air blow on my foot. I’ve seriously considered amputation, ketamine comas, and other experimental treatments because the thought of my life being affected by this much pain is unacceptable to me.
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